Fibromyalgia Support Group

 

July 2006
 
I have been suffering from FMS and CFS (Chronic Fatigue Syndrome) since 2003, getting worse, been to doctors, heard them, followed them, I guess chanting the Holy Name is the only panacea...

I wonder how many doctors would ever feel for their patients and diagnose that it is FMS instead of pacifying the patient with numerous lab tests and steroids, anti-depressants and muscle relaxants.

 
My OBGYN was a very kind soul. He told  me that I suffer from FM. Then I began reading on the various websites and got an insight into my existing physical condition. Other specialists simply made me run around the bush giving me temporary relief and sadness. 
 
Now I am on my own, taking an herbal supplement -- Bosiwillian from the health food store, taking aspirin for my constant chest pain (inflammation of chest muscles), multivitamins, do as little as possible at home because I get very tired very soon, completely changed person --very slow and lethargic, tremendous loss of memory and most embarrassing unable to solve simple arithmetic in classroom involving multiplication sometimes and unable to coin words while talking with students.

The saddest aspect to this suffering is that the face of the patient does not speak about the tremendous pain so the family, friends and colleagues are most of the time unaware how much pain one has to constantly go through.

 
I would love to get in touch with someone who suffers from FMS and CFS, if you know anybody in our vaisnavascare, please let me know if possible.
 
Thanks,
Regards,
September 20, 2006

Hare Krsna, dear Sriji dasi!

Please accept my humble obeisances. All glories to Srila Prabhupada!
It is very interesting that your mail is posted in the C.A.R.E. I am glad you
did! I too am suffering from FMS which was diagnosed 4 years ago as pain
increased. Thank you for sharing your health problems. I haven't found yet any
herbal medicine that would help. So I have to take those analgesics (pain
killers) also. Otherwise I would not be able to "function" go through my daily
routine. I too have learned nobody can understand what FMS people go through,
unless they have the same problem.

Sorry but I have no hint for you which could help only my sympathy.
If you like you can mail me. I would be more than happy to hear from you more.
So we could exchange experiences.

May I wish you all the Lord's blessings and His mercy!

Yhs
Hari Kripa DD

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July 28, 2006

Please accept my obeisances. All glories to Srila Prabhupada.

I just read your post & can sympathize with your predicament. I've had CFS for many years now. It's a daily battle for me. Krishna's mercy !

Your servant, 
Jagadvira das

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